Heterotaxy Awareness Day (HAD) is less than 2 months away
and it is a time to not only raise awareness, but also to connect with other
heterotaxy families. Here are just a few ideas. Please share additional ideas
in the comments!
1. Get moving. We are thrilled to announce our inaugural
Heterotaxy Connection Anyway 5k, a fundraising opportunity that also raises
awareness. The best part is that you can do it however you want. You can walk,
run, or roll! You and other local families could organize a traditional 5k in
your area or you could pledge to cover that distance on your own over a week.
It’s up to you! More details coming soon!
2. Get together. One of the most rewarding parts of HAD is
joining together with other families who have been on a similar journey. In the
past, families have met at zoos, aquariums, parks, and houses to celebrate our
heroes.
3. Proclaim. A great way to raise awareness is by getting
your state or local government to proclaim May 4th Heterotaxy
Awareness Day.
4. Wear Awareness. Proudly wear teal and gold on May 4th.
T-shirts and other items for the whole family will be available soon.
5. Spread the word. Share your story with your local media.
6. Goodies. Create items to hand out on awareness day.
7. Balloon release. Release balloons in memory of the
Heterotaxy Heroes we have lost.
We can’t wait to see how you decide to celebrate Heterotaxy
Awareness Day!
Please e-mail stacy@heterotaxyconnection.org
with any questions and/or suggestions.
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