We will never stop fighting!

Our son, Palmer Nicklaus Strong was born 4/1/17 in Austin, TX. We received the Heterotaxy Diagnosis 12 weeks into my wife Kristen's pregnancy. We tried to research what Heterotaxy meant for us and our soon to be baby, but the more we read, the more questions we had. The Dr.'s and Cardiologist's, although aware of Heterotaxy, couldn't truly ease our fears or answer all of our questions, because as you know about this condition, there are just so many unknowns, especially in utero. Palmer was diagnosed with Dextrocardia, AVSD, and PA. 

Upon his arrival, we quickly realized it was much much worse. His first echo revealed TAPVR and MAPCAs. Palmer also had bi-lateral SVCs which have proven to be difficult in his current situation on ECMO. Palmer is now 43 days old, 33 of these have been on open chest VA ECMO at Texas Children's Hospital. I could have never imagined a 43-day period this tumultuous and difficult, and my wife and I are praying that we can have more. 

Palmer was given 0% chance of survival in Austin, and since having surgery at TCH, we have continually been told he has very little chance of survival. We continue to fight because Palmer continues to fight. We have created Heart Strong to honor our son as well as all of the babies and parents that are living with a Heterotaxy and CHD diagnosis. We honor Palmer by honoring others. We will never stop fighting! The logo represents the backwards heart that many of our babies have as a result of this syndrome. The HS represents Heterotaxy Syndrome, and the missing pieces in the letters represent the pieces that may be missing or broken within our children. But as a whole, our children are still Strong! Heart Strong!