Wednesday, March 9, 2016

Heterotaxy Awareness Day - May 4th!

Heterotaxy Awareness Day (HAD) is less than 2 months away and it is a time to not only raise awareness, but also to connect with other heterotaxy families. Here are just a few ideas. Please share additional ideas in the comments!


1. Get moving. We are thrilled to announce our inaugural Heterotaxy Connection Anyway 5k, a fundraising opportunity that also raises awareness. The best part is that you can do it however you want. You can walk, run, or roll! You and other local families could organize a traditional 5k in your area or you could pledge to cover that distance on your own over a week. It’s up to you! More details coming soon!




2. Get together. One of the most rewarding parts of HAD is joining together with other families who have been on a similar journey. In the past, families have met at zoos, aquariums, parks, and houses to celebrate our heroes.



3. Proclaim. A great way to raise awareness is by getting your state or local government to proclaim May 4th Heterotaxy Awareness Day.



4. Wear Awareness. Proudly wear teal and gold on May 4th. T-shirts and other items for the whole family will be available soon.

5. Spread the word. Share your story with your local media.

6. Goodies. Create items to hand out on awareness day.



7. Balloon release. Release balloons in memory of the Heterotaxy Heroes we have lost.



We can’t wait to see how you decide to celebrate Heterotaxy Awareness Day!


Please e-mail stacy@heterotaxyconnection.org with any questions and/or suggestions.

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